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Excellent write up Mark – that’s exactly how I feel. Mostly I’ve learned to hide how I feel, hide the pain, stop explaining myself and when asked how I am I’ve learned to smile and say «yeh good». Let’s face it people don’t REALLY want to know when you feel lousy as they can’t handle it and only want good news. Sometimes MS like other non visible illnesses is a curse and one you learn to live with alone – even some Neuro’s and Dr’s don’t *get* it so how can we expect friends, family and strangers to understand. Recently my Neuro and Dr said it’s not a painful disease – so what hope have I got explaining it to those outside the medical field if this is the sort of ignorance and arrogance shown by some Dr’s. I’ve even been judged by someone with an illness who believed their illness is worse yet they can work so why can’t I. Like it’s some kind of contest for whose the most worthy due to being ill and able to work. Crazy world we live in – sometimes it’s easier to just keep quiet and carry the burden alone. Anyway thanks for sharing Mark it’s much appreciated.
Yeah, SMILE AND NOD, that is a NECESSARY skill to have with MS it seems. (más…)